There Is One Thing More Disturbing Than Your Own Thoughts

The thoughts you perceive others to have.

I wish there were an easy fix to severe mental illness.

Because right now, I’m at a loss for words.

Because right now I feel terrible.

I don’t usually get down on myself all that much, but at present, I’m feeling that between my meds, my illness, and my upbringing, things are quite difficult!

When you have a thought disorder, enter me, the shit is real and the shit is tough!

I want to crawl under a rock, but I have better coping skills than that.

I want to just be told that things are going exactly the way they’re supposed to…

I had a psychiatrist that I saw for close to 15 years, and he was amazing!

I am giving my current psychiatrist every chance, but I have changed so much in the past four or five years, that I don’t think that A) the old doctor would completely know me; and B) the new doctor knows of where I’ve been.

And, the new doctor may very well know all of these things. It is possible.

One thing I’ve got going for me is that I am open, so if there’s a subject or subjects I want to broach with this new physician, I’m going to do it!

Do you have trouble speaking up to your mental health providers? What have the results been when you do?

P.S. I know that what other people think of me is none of my business, but try telling that to me when I’m not doing so well, which seems to be a lot as of late.

A Winter Mental Health Update

Every day is tough!

My psychiatrist is trying to re-build rapport with me, after my meds were notably ineffective during a major life event.

I appreciate his efforts, and we will “get there again,” I’m sure.

More on my difficulties…

I am anxious an awful lot! But, what I describe as anxiety is much more than that. It’s psychosis (as far as I can tell), but I am not a mental health professional.

The people in my life seem to be there because they want to be, and since none of them are causing any harm, they are all welcome!

It has taken me years to fully understand and appreciate a non-toxic life. And, this has included years of learning how to implement boundaries, and know the difference between what is healthy and unhealthy for me.

Interestingly enough, politics has helped in clarifying what I personally believe and what others do as well. This matters a lot when it comes to protecting my mental health.

So, while I don’t discard the people who aren’t causing any harm, I do adamantly disagree with my friends who follow Conservative politics.

But, just because we disagree, doesn’t mean we shouldn’t get along.

Some of my best friends and closest family members and I share different politics, and that’s okay!

As I spend every day, doing some kind of reading up on the state of our world, I do consider myself fairly well-informed.

But, that just means I’m not taking anyone’s crap!

Anyway, am I happier this way?

For being informed, yes. For what it is doing to me, probably not.

Are you informed and truly so? Do you consider yourself happy amid the world’s troubles?

Thanks for reading and I hope whatever holidays you celebrate or don’t celebrate, go well for you!

Sadly, Things Have Never Been Quite Right

I had a heck of a time growing up.

I never got along with other kids, and the few “friends” I had were just neighborhood kids, that were probably told to be nice to me.

I remember many, many times throughout K-12 being bullied and having to fight.

I was just very different from a lot of other kids.

Looking back, I can see that my parents were just as confused about various things in their own lives.

And, that led me to respect them and their journeys that much more!

It took me most of my 47 years to get to this point, but now I can say… I’m sorry mom/dad and I love you!

I only have one parent to say that too, but I also know that the other parent (who died some years back) would have understood (and did)!

My main desire for myself will probably never come to be, and that’s to remember life at a time when I wasn’t on meds.

While I am a big proponent of meds, I also know that they don’t fix everything. And in fact, they cause troubles with our day to day experiences. Especially anti-psychotic medications.

So, whatever you’ve been through, whatever your plight, please realize there have been thousands (if not millions of people) who have experienced what you’ve gone through, and ended up okay!

I am one of them! Even if I’d like for things to be different.

Genetic Diseases Suck

I wanted to share that I wrote three posts between yesterday and today, while accidentally having skipped a number of psych meds, that affect my disposition. But, at least I get certain things out!

There seems to be dementia on both sides of my family. Not to mention, mental illness, which I already have.

And, while I am obese (which obesity runs on one side of the family), I keep trying to find enough happiness/peace/stability, that I can do better with eating and exercising.

I’ve actually lost about 10 pounds since being sick with a cold. The cold is not Covid, and has helped me to realize I need allergy meds. So, I now have those.

Anyway, genetic diseases suck per the post title.

Some day, it will be within more people’s reach to cherry pick their offspring’s genes.

Since I don’t have that kind of money and have NO desire to have children, this is a non-issue for me.

And, while I’m thinking about it… I am damn proud! I am damn proud of the work I’ve done so far in life. I am damn proud of the awareness I sometimes have. And, I am damn proud that I could give a shit less about assholes (with particular attention paid to those I once knew, who have also wronged me).

It’s all good!

Day by day… 🙂

Have a good one!

Things I Feel I Must Come To Terms With

While I don’t really want to die, I think a lot about death.

And, because of the problems with current treatments for my schizoaffective disorder, I will likely die of an obesity-related illness.

I know. To some, this will sound defeatist.

But, no matter what I do, I can’t sleep consistently and I am not able to eat less with consistency either.

Both my weight and lack of a consistent sleep routine have caused me a great deal of pain, for at least 20-something years.

And, this isn’t about diet! It’s about how the medications I take affect my weight, sleep routine, and activity level. And, how I’d like to have a better plan of action moving forward.

I try so hard! And, currently, I have about three days a month, where I sleep eight to nine hours straight and feel rested.

Plus, I’ll still need one to three naps, even when I get that amount of sleep.

I do go to bed at the same time every night, but I oftentimes have difficulty staying asleep the whole night.

I guess I’m just writing all of this, because I am worn down and could use some advice.

Maybe this community has some suggestions? I’m open to hearing what you have to say.

Implementing long-lasting change will probably be up for grabs.

But, maybe not.

And, therapy is off the table.

The Basics Of Dealing With My Severe Mental Illness

My responsibility in life is to firstly, take my meds.

Taking care of myself is difficult.

But, how much more difficult would it be without any medications?

I want to say that taking care of myself to the best of my ability is what I have to do!

For me, there have been many moments, where I question my ability to do more, and those moments are typically followed by my having great difficulty doing even the basics.

Thus, it’s a cycle—whereby I want to contribute more, but I can’t.

It’s a reluctant, but necessary “NO” to a world and to people who do not understand.

And, some will say… what can you do?

Aside from sometimes forcing myself to have and to work on hobbies…

I can sleep too little or too much and not be rested.

I can follow a checklist and not make any real progress.

I can be concerned, panicking about my future as I age.

So, I can do several things, including thinking that I am not depressed, when I am actually quite depressed.

And, a lot of this makes me think about others battling chronic illnesses—do we ever really get out of survival mode?

Or, is there another term to describe the challenges we face?

Please share your thoughts in the comments.

I Went To The ER Last Night, For Pain That Needed To Be Addressed Right Away

Some tests were ran, I was diagnosed and given some medication, and I was told to come back if my condition worsened.

Long story very short, I was one of the lucky ones here in the U.S.

I did NOT have to stay parked outside, wondering if my credit was going to be ruined, or if bankruptcy was just around the corner. All because I couldn’t pay the outlandish bill!

I did NOT have to worry about substandard health care either.

My health care experience, as a whole, makes me a part of the minority of Americans these days.

I already know that a cat scan (which was required to diagnose my condition) costs about $5,000 USD, and that tonight’s treatment (and subsequent bill) will likely run close to $8,000 USD.

How would you have handled the situation where you live? What would it have been like for you? Whether you are insured or not, please walk me through your experience with going to the ER for pain that needed to be addressed right away!

3 AM Thoughts

In my life, I’ve done a lot of questioning and I’ve come a long ways.

And, I’ve been uncomfortable A LOT.

My family is both uber religious and ultra conservative.

Among other things, they are self-righteous and care only about themselves.

Many of my friends are slightly less religious, but also quite conservative.

I live in the Midwestern United States, and here, that is the norm.

That being said, I’ve managed to travel in the opposite direction of everything I once knew!

I’m definitely different, the odd ball of my group.

I’ve worked on myself for the past 25 years. And, I have done the best that I could as often as I’ve been able.

And, it has been soul-crushing, trying to make sense of the senseless.

I haven’t been privy to ignoring so many of life’s atrocities, anymore than I can ignore the fact that many Americans think that the U.S. is the only country worth consideration in the world!

Yes, I struggle to love those who could care less. I grapple with loving the “shitty.”

So, as of late… I don’t.

If you didn’t come to your own (healthy) conclusions about religion and politics early on, based off of YOURS (and, others’ experiences)… you are probably following the religion and politics of your family.

An easy and automatic decision for many.

And, I get it. It’s uncomfortable for some people to think about others as their equals, and it’s easy to explain away others’ grief, especially when so many people haven’t “paid their dues.”

But, why must we do that? Think that way? Aren’t we more evolved than that? Don’t we see the shades of gray?

There are lots of choices in life. And, numerous reasons for choosing the (liberal) path that so many before us, have.

Racism. Social Justice. Equality. A woman’s right. To name four!

We are in a war of morals, of human decency. And anymore, I am creeped the fuck out!

But, I’ve also learned that one’s suffering can be the greatest of teachers.

And, I’ve come to learn that you are either practicing greater self-awareness or you are feeding your ego.

Please remember that.

I have found the above statement to be one of life’s ultimate truths!

You are either practicing greater self-awareness or you are feeding your ego.

Powerful thoughts for 3 AM.

This Is Treatment Resistant Schizoaffective Disorder II

It’s quite likely that the medications I am taking for my psychosis are providing me with some protection, but not a great amount.

Right now, I am anxious and I want to die, but I know that you only get one life.

Thus, taking it away, even though I am struggling immensely, seems like a bad idea.

What needs to happen is that I need to get on a good medication regimen.

One of my problems is that I already weigh 400 lbs., so any additional medication changes need to be carefully thought out.

I have been on my current antipsychotic medication for around 15 years, give or take.

So, I guess it’s just time to find something new.

None of this is easy. My brain worsening is what is happening, and I don’t take that very lightly.

I am just frantic.

This Is Treatment Resistant Schizoaffective Disorder I

I do not know where I’d be right now, if my depression wasn’t being medicated successfully. Also, my schizophrenia is NOT being medicated successfully.

Sometime in the past six months, give or take, I became quite worse on the main antipsychotic I am on.

I am not well.

You’ve heard this from me before, and the difference is, things are more dire than they were previously.

Right now, I am hallucinating pieces of conversations, and having severe delusions, oftentimes while in the process of talking to people.

This is schizoaffective disorder—the treatment resistant type.

For me, I am more aware in some ways than others who battle this illness, mainly because I am trying to “fix” the problem.

So, this affords me the opportunity to explain my issues in greater detail, right?

I suppose so, but what REALLY matters is that I get my medications straightened out.

I just want to get back to my version of “good” again!

Just gotta hold on!