Genetic Diseases Suck

I wanted to share that I wrote three posts between yesterday and today, while accidentally having skipped a number of psych meds, that affect my disposition. But, at least I get certain things out!

There seems to be dementia on both sides of my family. Not to mention, mental illness, which I already have.

And, while I am obese (which obesity runs on one side of the family), I keep trying to find enough happiness/peace/stability, that I can do better with eating and exercising.

I’ve actually lost about 10 pounds since being sick with a cold. The cold is not Covid, and has helped me to realize I need allergy meds. So, I now have those.

Anyway, genetic diseases suck per the post title.

Some day, it will be within more people’s reach to cherry pick their offspring’s genes.

Since I don’t have that kind of money and have NO desire to have children, this is a non-issue for me.

And, while I’m thinking about it… I am damn proud! I am damn proud of the work I’ve done so far in life. I am damn proud of the awareness I sometimes have. And, I am damn proud that I could give a shit less about assholes (with particular attention paid to those I once knew, who have also wronged me).

It’s all good!

Day by day… 🙂

Have a good one!

Things I Feel I Must Come To Terms With

While I don’t really want to die, I think a lot about death.

And, because of the problems with current treatments for my schizoaffective disorder, I will likely die of an obesity-related illness.

I know. To some, this will sound defeatist.

But, no matter what I do, I can’t sleep consistently and I am not able to eat less with consistency either.

Both my weight and lack of a consistent sleep routine have caused me a great deal of pain, for at least 20-something years.

And, this isn’t about diet! It’s about how the medications I take affect my weight, sleep routine, and activity level. And, how I’d like to have a better plan of action moving forward.

I try so hard! And, currently, I have about three days a month, where I sleep eight to nine hours straight and feel rested.

Plus, I’ll still need one to three naps, even when I get that amount of sleep.

I do go to bed at the same time every night, but I oftentimes have difficulty staying asleep the whole night.

I guess I’m just writing all of this, because I am worn down and could use some advice.

Maybe this community has some suggestions? I’m open to hearing what you have to say.

Implementing long-lasting change will probably be up for grabs.

But, maybe not.

And, therapy is off the table.

The Basics Of Dealing With My Severe Mental Illness

My responsibility in life is to firstly, take my meds.

Taking care of myself is difficult.

But, how much more difficult would it be without any medications?

I want to say that taking care of myself to the best of my ability is what I have to do!

For me, there have been many moments, where I question my ability to do more, and those moments are typically followed by my having great difficulty doing even the basics.

Thus, it’s a cycle—whereby I want to contribute more, but I can’t.

It’s a reluctant, but necessary “NO” to a world and to people who do not understand.

And, some will say… what can you do?

Aside from sometimes forcing myself to have and to work on hobbies…

I can sleep too little or too much and not be rested.

I can follow a checklist and not make any real progress.

I can be concerned, panicking about my future as I age.

So, I can do several things, including thinking that I am not depressed, when I am actually quite depressed.

And, a lot of this makes me think about others battling chronic illnesses—do we ever really get out of survival mode?

Or, is there another term to describe the challenges we face?

Please share your thoughts in the comments.

I Went To The ER Last Night, For Pain That Needed To Be Addressed Right Away

Some tests were ran, I was diagnosed and given some medication, and I was told to come back if my condition worsened.

Long story very short, I was one of the lucky ones here in the U.S.

I did NOT have to stay parked outside, wondering if my credit was going to be ruined, or if bankruptcy was just around the corner. All because I couldn’t pay the outlandish bill!

I did NOT have to worry about substandard health care either.

My health care experience, as a whole, makes me a part of the minority of Americans these days.

I already know that a cat scan (which was required to diagnose my condition) costs about $5,000 USD, and that tonight’s treatment (and subsequent bill) will likely run close to $8,000 USD.

How would you have handled the situation where you live? What would it have been like for you? Whether you are insured or not, please walk me through your experience with going to the ER for pain that needed to be addressed right away!

3 AM

In my life, I’ve done a lot of questioning and I’ve come a long ways.

And, I’ve been uncomfortable A LOT.

My family is both uber religious and ultra conservative.

Among other things, they are self-righteous and care only about themselves.

Many of my friends are slightly less religious, but also quite conservative.

I live in the Midwestern United States, and here, that is the norm.

That being said, I’ve managed to travel in the opposite direction of everything I once knew!

I’m definitely different, the odd ball of my group.

I’ve worked on myself for the past 25 years. And, I have done the best that I could as often as I’ve been able.

And, it has been soul-crushing, trying to make sense of the senseless.

I haven’t been privy to ignoring so many of life’s atrocities, anymore than I can ignore the fact that many Americans think that the U.S. is the only country worth consideration in the world!

Yes, I struggle to love those who could care less. I grapple with loving the “shitty.”

So, as of late… I don’t.

If you didn’t come to your own (healthy) conclusions about religion and politics early on, based off of YOURS (and, others’ experiences)… you are probably following the religion and politics of your family.

An easy and automatic decision for many.

And, I get it. It’s uncomfortable for some people to think about others as their equals, and it’s easy to explain away others’ grief, especially when so many people haven’t “paid their dues.”

But, why must we do that? Think that way? Aren’t we more evolved than that? Don’t we see the shades of grey?

There are lots of choices in life. And, numerous reasons for choosing the (liberal) path that so many before us, have.

Racism. Social Justice. Equality. A woman’s right. To name four!

We are in a war of morals, of human decency. And anymore, I am creeped the fuck out!

But, I’ve also learned that one’s suffering can be the greatest of teachers.

And, I’ve come to learn that you are either practicing greater self-awareness or you are feeding your ego.

Please remember that.

I have found the above statement to be one of life’s ultimate truths!

You are either practicing greater self-awareness or you are feeding your ego.

Powerful thoughts for 3 AM.

This Is Treatment Resistant Schizoaffective Disorder II

It’s quite likely that the medications I am taking for my psychosis are providing me with some protection, but not a great amount.

Right now, I am anxious and I want to die, but I know that you only get one life.

Thus, taking it away, even though I am struggling immensely, seems like a bad idea.

What needs to happen is that I need to get on a good medication regimen.

One of my problems is that I already weigh 400 lbs., so any additional medication changes need to be carefully thought out.

I have been on my current antipsychotic medication for around 15 years, give or take.

So, I guess it’s just time to find something new.

None of this is easy. My brain worsening is what is happening, and I don’t take that very lightly.

I am just frantic.

This Is Treatment Resistant Schizoaffective Disorder I

I do not know where I’d be right now, if my depression wasn’t being medicated successfully. Also, my schizophrenia is NOT being medicated successfully.

Sometime in the past six months, give or take, I became quite worse on the main antipsychotic I am on.

I am not well.

You’ve heard this from me before, and the difference is, things are more dire than they were previously.

Right now, I am hallucinating pieces of conversations, and having severe delusions, oftentimes while in the process of talking to people.

This is schizoaffective disorder—the treatment resistant type.

For me, I am more aware in some ways than others who battle this illness, mainly because I am trying to “fix” the problem.

So, this affords me the opportunity to explain my issues in greater detail, right?

I suppose so, but what REALLY matters is that I get my medications straightened out.

I just want to get back to my version of “good” again!

Just gotta hold on!

Hope With The Schizophrenia Disorders

I would like to streamline my life more.

I want to, but I can’t.

At least not now.

I try to make my life easier by napping when I need a rest, because that’s what feels good to me.

I know that’s not the advice that everyone here would give, but my symptoms become worse the harder I push myself.

I hate the position I am in.

I’d like to have a set schedule.

I’m at least trying to have a daily checklist.

I keep trying, because I want to be as good as I possibly can.

And, I am reminded that it’s the medications that aren’t all working, that make things way more difficult than what they need to be.

From what I hear… from what I’m told… there is hope with the schizophrenia disorders.

I believe that, and wish more progress for myself amidst this information.

How do you feel about getting along when the medication doesn’t quite work as it should? What kinds of standards have you set when your meds aren’t doing the job you’d like them to? What kinds of day to day standards have you set in general?

More Transparency With My Condition

On some level, I am treatment resistant.

When I hear the tales of others being symptom free for a long time, in some cases, years… I am reminded that at least in my case, that is not the situation.

It’s okay though, right?

I mean, we all have something to deal with.

It’s just difficult having any chronic condition—especially one that isn’t being treated with a high degree of relief.

I think, for me, I sometimes employ high expectations of the people, places, and things in my life.

Because I am not asymptomatic. I have a plethora of mental health nuances, so I just have to deal—as does anyone else.

And, that is what I do.

Is being treatment resistant your reality? What’s the next step for medical technology? And, how do you reconcile your chronic conditions with the notion that some people do go a very long time and do quite well with their so-called chronic illnesses?

I’m Struggling And Need A Kinder Routine, Some Relief

Gratefully, a new, supplemental antipsychotic medication is on the way!

Aside from that, I am stuck in my thoughts.

I try and find meaning into everything I think, and I no longer know how to relax very well.

Since I take my medications to ultimately avoid hospitalization, I am sometimes stuck with symptoms in a way that some other people might not be.

I’m not sure to tell you the truth.

I just know that no matter what, I do all I can to avoid the hospital.

There are drawbacks to my approach though, like for instance, my life, which is not going as well as I’d like it to be, is oftentimes in shambles. At least it has felt that way for quite awhile.

So, I will continue to take things a day at a time, as I try and restore some sanity with my meds and a kinder routine.

At the times you feel notably worse than others, what kinds of compassionate/routine-type things do you involve yourselves in?