This Is Treatment Resistant Schizoaffective Disorder II

It’s quite likely that the medications I am taking for my psychosis are providing me with some protection, but not a great amount.

Right now, I am anxious and I want to die, but I know that you only get one life.

Thus, taking it away, even though I am struggling immensely, seems like a bad idea.

What needs to happen is that I need to get on a good medication regimen.

One of my problems is that I already weigh 400 lbs., so any additional medication changes need to be carefully thought out.

I have been on my current antipsychotic medication for around 15 years, give or take.

So, I guess it’s just time to find something new.

None of this is easy. My brain worsening is what is happening, and I don’t take that very lightly.

I am just frantic.

This Is Treatment Resistant Schizoaffective Disorder I

I do not know where I’d be right now, if my depression wasn’t being medicated successfully. Also, my schizophrenia is NOT being medicated successfully.

Sometime in the past six months, give or take, I became quite worse on the main antipsychotic I am on.

I am not well.

You’ve heard this from me before, and the difference is, things are more dire than they were previously.

Right now, I am hallucinating pieces of conversations, and having severe delusions, oftentimes while in the process of talking to people.

This is schizoaffective disorder—the treatment resistant type.

For me, I am more aware in some ways than others who battle this illness, mainly because I am trying to “fix” the problem.

So, this affords me the opportunity to explain my issues in greater detail, right?

I suppose so, but what REALLY matters is that I get my medications straightened out.

I just want to get back to my version of “good” again!

Just gotta hold on!

What To Do When You’re Treatment Resistant To Psychiatric Medications

In my experience, you take the medications anyway.

I am still very symptomatic, and life is quite a challenge for me.

I won’t get into a lot of detail regarding my symptoms, but I can tell you that many of my symptoms are classic schizophrenia symptoms.

There isn’t much left to the imagination where my mental health is concerned.

I only wish, that after trying a half dozen medications, I had greater relief.

And, while it’s true that I haven’t gone to a second line of defense medication (i.e. clozapine), I have been doing all I can at present, to make things manageable as they are.

What are some of your experiences with trying numerous psychiatric medications?

I’m Struggling And Need A Kinder Routine, Some Relief

Gratefully, a new, supplemental antipsychotic medication is on the way!

Aside from that, I am stuck in my thoughts.

I try and find meaning into everything I think, and I no longer know how to relax very well.

Since I take my medications to ultimately avoid hospitalization, I am sometimes stuck with symptoms in a way that some other people might not be.

I’m not sure to tell you the truth.

I just know that no matter what, I do all I can to avoid the hospital.

There are drawbacks to my approach though, like for instance, my life, which is not going as well as I’d like it to be, is oftentimes in shambles. At least it has felt that way for quite awhile.

So, I will continue to take things a day at a time, as I try and restore some sanity with my meds and a kinder routine.

At the times you feel notably worse than others, what kinds of compassionate/routine-type things do you involve yourselves in?

How Do You Maintain Connection When You Have Mental Illness?

For me, I wasn’t able to maintain many relationships for the first several years of my illness.

And then, with time, I slowly began to “try.”

It is difficult having schizoaffective disorder without a doubt, and I am in my 24th year since my first psychotic break!

What that means is that I’ve had time to “figure” some things out, which has much to do with my engaging with my doctors.

But, every day (and I mean every day), I am symptomatic!

I am hoping to get on a medication that will augment my current regimen.

Will that happen?

I don’t know.

I may ultimately have to go to something stronger.

What I’ve learned is that I’m going to have good days and bad days.

But, as always, I try… and, take things one day at a time.

Have you learned to slow down to the point that you are now taking your fight with mental illness, one day at a time? What did that look like for you? How did you get to the one day at a time mentality?

Another Update On My Mental Health

Recently, I wrote about how I am really struggling with my mental health.

Per my psychiatrist mainly, I’ve learned that the meds are not fully doing their job anymore.

I’ve also began really dissecting my thoughts, like never before.

And with all of this, I’ve come to realize, yes, I am doing better with medication; but, there is some resistance to treatment with regards to the efficacy of my meds.

This has been a long time coming.

So many people with severe mental illness struggle to be on meds that work.

I’m seeing that now more than ever before!

Thus, I know that the medication is why I am having such a difficult time overall.

What do I do? I mean, what can I really do?

As I’ve written previously, I am expecting to discuss my situation soon with my doctor and my wife.

My wife and I and other support people have already discussed this matter, so I have a lot to take to my psychiatrist in a few weeks.

I will keep you updated!

In the meantime, I will just say that I know the meds protect me quite a bit… but, they don’t clear up my instance of severe mental illness much at all.

I just want to feel better and I am afraid I’m going to continue to be stuck. For years possibly.

I hope I am wrong!

Have any of you ever felt stuck? What did you do to become unstuck?

This Is Mental Health Awareness Month

Being aware of your mental health is extremely important!

Being aware of how you handle your mental health is also extremely important!

I can say that having schizoaffective disorder, and asking a lot of questions to my providers, personally helps me to deal with it!

Sometimes I am even “good” at the kinds of questions I ask!

Asking better questions helps me to understand things on a deeper level!

What are you doing (or can you do) to make your life more manageable?

If you are struggling, you are not alone!

I came by this disorder honestly.

Not everyone does though.

And, that’s okay!

What matters the most is that we get the necessary help for “ourselves” and for our “loved ones.”

Life is not easy!

But, learning to take life a day at a time has only helped!

The Prospect Of Taking Clozapine

Earlier today, I wrote about possibly having treatment resistant schizoaffective disorder.

I already have schizoaffective disorder, but things seem to have taken a turn for the worse.

What’s getting at me a lot right now is a belief that I’ve held that I am doing “so well,” in spite of being severely mentally ill.

I feel my transparency is causing me mental anguish, in that I am educated, well-spoken, and a fucking delight most days!

And, this causes me problems believe it or not! 🙂

I’d likely do better to get out of my head more.

The only problem with that is that I don’t have enough close family history to try clozapine, which those with a psych background will understand.

With clozapine, you need to not die basically, which of course, is a good thing.

You’re monitored a LOT when you take clozapine!

And, since I don’t know my close family history well enough to say that my father who died suddenly (when he was fairly young), didn’t have a cardiac arrest while passing, I am scared.

I guess the next time my doctor and I meet up, we will weigh the pros and cons of being on the medication.

I really don’t want to die at 47.

Abilify has given me just enough get up and go to not feel totally stuck!

And now, that could all be changing, along with the potentiality of dropping dead.

I hope your life is going better. :/

This is not drama. This is real life and real pain.

And, while I’ll get through this stage of my life eventually… things are not the greatest right now.

Tell me something that’s going well for you if you will.

The Medication Adjustment

What I strongly dislike about my situation:

I didn’t do anything to create it, I have to live with it, and it cannot be fixed!

Now, I am sure we all have things to bitch about… but, a mind that never heals? How does one remedy that?

It’s not the same as having a condition that gets better with time.

And, I am making progress. The so-called “getting better,” for me, takes a lot of self-effort. But, things are not anywhere near where I’d like them to be!

I know I just need to practice better patience.

Also, we all work pretty hard, don’t we?

I am going through a medication adjustment right now, and I suppose that makes my bitching a lot more pronounced!

What being on the proper dose of medication does for me:

It keeps me progressing (even if I am taking baby steps) and keeps me out of the hospital!

What I do best:

Contain the “crazy.”

My Antipsychotic Reduction

I am going through a 1/3 strength reduction of my antipsychotic medication.

It’s been more of a challenge these past two months, and that is entirely due to the fact that I have less of this main medication in my system.

What it’s teaching me is that I have to learn new and better coping skills on lower dosages. And, that my worth is not tied to how much medication my system can tolerate.

My psychiatrist made it clear that within two months, I’d be recognizing the full change in effect.

And, now that two months have passed, my wife and I had a discussion about things, where we determined that I am going to have to go back to the old dose.

My symptoms (while I’ve been more aware of some of them), have caused me some issues. And, I think the issues are pronounced enough that I need the extra help.

I’ve tried med changes and reductions in the past, and it is pretty typical for me to have to reinstate old medications/old doses.

Oh well! I am grateful for my piping up and telling my doctor how I felt on the old regimen!

All I can do is try!

What are some of your medication failures and successes?